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A frank
account of my accident & life since.
June 9th
2000
A day
that I'll never forget & one that would change my life forever. I was
the keen owner of a Yamaha R1 motorcycle having 'upgraded' from a Honda
Fireblade that I'd had for 2 years. To be honest though they were
weekend/sunny day toys (though I'd done plenty of miles) as I had a busy job, company car & all that. So a
once a year jaunt with work colleagues was something we'd talked about & planned etc for quite a
while, and we were all really looking forward to it. I started biking late I
guess just like a lot of people. When I was 16/17 I used to buzz round on
various things up to 250cc then just like a lot of people you get into girls
& cars etc. Then marriage/kids/mortgage takes it's financial toll &
before you know it you're coming up to 40 but I decided to get it out of my
system & because I could afford it went ahead. Born again bikers have had a
bit of a bad rep in the UK but I honestly didn't classify myself as a
stereotypical one as I worked my way up to the power these things kick
out & I'd been to Assen in Holland on long trips & track day instruction
days, so I fully knew my bike.
Of course
none of that would have helped me anyhow as you can't legislate for mistakes by
people especially on a 2 lane 1 way road. I guess it's just that tiny moment in
time where I was in the wrong place & 1 second later/earlier and I'd
probably be 'normal' for the rest of my life. A lot of hypothesis I know so life
goes on and you have to deal with it.
I'd planned
to work from home in the morning on the PC catching up on admin etc &
basically keeping my head down as the lunchtime deadline drew nearer. I'd
already packed the bike the night before so it was just me getting ready.
I'd arisen
that morning I recall in trepidation as with all biking trips (in this country)
the weather is always questionable & had been a bit wet & changeable in
the previous couple of weeks prior. I was pleasantly surprised to see it dry if
not a little overcast. After the usual getting ready duties I was ready to start
the day but needed to pop outside & talk to our builder who was building an
extension for us & was my big project for the summer i.e. decorating etc (so
much for that)
I remember standing outside talking with a cup of tea & my wife saying
goodbye as she set off for work & I barely acknowledged this as I was deep
in conversation but I perceived a 'look' so I recall going round the front to
see what was up. Of course I was admonished & had to say goodbye properly,
not that we were kissy kissy or anything but at least a normal goodbye. I
wish I could go back & give her a normal cuddle.
I remember
getting to about midday & thinking 'right that's it' I'll start the process
of getting into my full leathers etc and get round to my mates early. We had to
meet the others at Junction 2 of the M50 about an hour and a half away so I
thought if we allowed 2 & a half hours it would be plenty. I drove off
earlier than agreed to my mates house (six miles away) as I thought I could
always have a coffee. Which is what happened really, got there & he was
still getting ready so I had a coffee in his kitchen with his wife/kids/dogs
while he passed through every now & again in a state of dress. We left around
12.45 pm & I recall feeling pretty chilled out & relaxed with plenty of
time but still that excitement in my belly of a biking trip ahead.
My mate
lives in a small village adjoining a dual carriage way (2 lane one way road to
the foreigners) leading to Chippenham or the Motorway so we left his house & had to turn right onto the dual
carriageway at a set of lights. They were red then after another short distance
another set of lights we were held at red. I remember flipping up my visor and
looking at his bike which was brand new and quite rare then (MV Augusta F4) and
admiring the lines. Lights changed and a car shot by as he caught them just
right but we soon accelerated by as bikes are so much quicker. I recall not
being in a hurry & perhaps going along the road at 70mph and life felt
good...
I remember
nothing about what happened next. The facts from the police report & witness
statements are:
We rounded a
very shallow left hand bend with my mate in front and me in line behind, but we
were in the right hand/outside/fast lane for visibility benefits when 200 yds
ahead in a lay by on the left hand side an old (77 yrs) man and his lady
companion decided they were lost. Instead of going up the road and looking for a
roundabout or safe place to turn they could see a gap in the central reservation
for use by the cottages on the left. The old chap decided to do a U turn and
proceed up the opposing carriageway. My mate saw this happening in a flash but
assumed the old guy was pulling out into the slow lane so delayed a little then
tried to warn him by horn as well as taking avoiding accelerating action by swerving around
the front of the mans car before losing control & ploughing straight on
across the grass towards the oncoming/opposing dual carriageway then falling off
and breaking a finger & ankle. Normally there is oncoming traffic &
he would probably have died or been seriously injured but luckily for him there
was nothing coming the other way.
Myself I saw
nothing (as evidenced by the short skid mark in the police photos) that I can recall just a vague feeling that you get that I'm about to
hit something and perhaps jumping upwards but I'm not sure as it's all dreamy. I
hit the car at around 40-60 mph (ish) in the rear just 2 feet from the rear bumper but in
the side perpendicular to it as it tried to get across 2 lanes of carriageway, a
witness coming the other way who saw the whole event says I had no chance and
tried to brake/swerve but only had a second or two to react, but I can't recall
a thing.
As you can
imagine hitting a solid object at speed on a motorbike doesn't do you a lot
of good. I'm not sure what happened to me but my guess of jumping upwards was
probably correct then being thrown over. The police report states a minimum
speed of 35-43mph plus impact absorption from their measurements of where I
landed etc. At this stage I was close to death & unconscious but
luckily for me there was very close by a paramedics training session & the
guys had just finished & in a van travelling my way so they were on the scene to stabilize my neck etc. Had I moved one centimeter
I probably wouldn't be here to tell the tale. I was airlifted (first time ever
in a helicopter & I can't remember a thing) to Royal United
Bath and there began the process of saving my life. Still unconscious I was
admitted to A&E/ICU (Intensive care) and put on life support/venting and all the paraphernalia
that goes with it. MRI scans revealed a fracture at C7 but worse still severe
damage at C3-4 (but incomplete) & a residual cyst, then I was given the now normal massive
one off steroidal jab to help reduce swelling, and to stop natural antibodies
killing off some of the good stuff. I'd also severely damaged my
knees and the left leg which typically has 4 ligaments had 2 or 3
ruptured and the right knee had 1 or 2 damaged ligaments, presumably from
jumping upwards & my knees hitting the top of the car. Also some toes in the
left foot were dislocated so had to be pinned. Also a nasty halo traction system
installed in my skull with weights to keep your head pulled back correctly.
Another point
of note was that because I was wearing full leathers my body relatively survived
any awful damage i.e. skin being ripped off or elbow & shoulder damage, I
always wore the full kit even on hot days as you hear some people would have
survived if they had worn leathers etc.
In the mean
time the police had been trying to contact my wife (Heather) who had the afternoon off but
she'd gone to visit a colleague before getting home. When she arrived home at
around 2.30 pm there was a police car waiting on the drive. They could not
be specific but confirmed it was very serious and touch & go as to whether
I'd survive (always bad if they say that) Can you imagine her thoughts & turmoil as she made her way down
to the hospital. The next couple of days are a blur in my memory but I vaguely
remember delirium & saying unintelligible things. But gradually recall
awaking to the realization of tubes in my nose/mouth everywhere and then the
awful reality of knowing I had full paralysis from the neck down and wishing I
could scratch my nose, & having to ask Heather to do it. I wished then &
there I'd died in the accident & have done many times since.
I recall a
moment in the first couple of days where they took me off the ventilator but
strapped an oxygen mask to me which was so uncomfortable (all of it was really)
then I'd ask for it to be removed for periods and because my lung cavities were
not functioning there was a machine with warning levels which kept triggering
when my oxygen levels went below a safe level. Eventually though I willed myself
off this mask/machine with help from Heather telling me to breathe properly. The
next hurdle was the feeding tube in my nose came out and they tried a few times
to get it back in but it caused me agony each time so they left it and said I
could try ice cream later but if I failed to eat then they'd have to put me out
and install the hateful tube in again. Will power again I managed to eat the ice
cream and another mountain climbed. As time went by I developed some movement in
my left arm and after a number of days transferred to a side room but could now
drop my hand on my face and scratch any itches (fantastic)
After 2
weeks or so because I was a 'private' patient I was able to 'fast track' the
queue to Stoke Mandeville SIU because Salisbury was too full with no likely
admission in the near future. I then faced the difficult transfer and longest
drive of my life as I was transported flat in an ambulance at 30mph on a journey
which normally would take an hour and a half but took twice as long. I tend to
get travel sick so can you imagine my dread facing this, but they gave me drugs
and fresh water on the way so I managed.
With the
wisdom of hindsight which is always a great thing I wish I'd got in at Salisbury
SIU as it's nicer, whereas Stoke are the typical NHS hospital short of equipment
& understaffed. After my admission in Stoke Mandeville and the usual
tests/observations I was placed in my position right next to the nursing station
for close monitoring as I couldn't operate an alarm switch. They observed a kind
of rash down below from lying in my own mess for a couple of weeks. The reason
being that Bath hospital gave me bowel drugs to keep me very loose but that escapes
without control etc all the time so you lie in it till the next clean up, but
due to it's acidic nature just like babies you get problems.
Suffice to
say Stoke use drugs but implement a 'once a day' bowel routine, unfortunately
starting at
5.30am in the morning and hopefully barring accidents that's it for the day. Now
to face the task of 9 weeks flat on my back on an electric turning bed looking
at the ceiling. Every 3 hours a nurse would come and rotate the bed to tilt the
other way for pressure relief. I can honestly say this was the worst period of
my life. A horrible uncomfortable bed, though I had not much feeling my
shoulders were/are hypersensitive and so painful all the time when tilted
sideways. But I couldn't use my hand well enough so couldn't read or use a phone
or TV remote control so could only look at the ceiling or into a mirror system
above my head so I could see people the right way up. Long days exacerbated by
being woken at 5.30am then maybe sleep time at 11-12 at night with the help of
Tamazipan sleepers. But I often didn't sleep well due hospital noises & some nurses who are so
uncaring they chat all night at the top of their voices and keep you awake. More
punishment.
I can only
say I got through this period with the thought of each day my wife who visited
lunchtime onwards every day until she went back to work then driving for up to two hours to get there for the evening. I cannot say
how much that meant and the sacrifice to her for the 7 months I was in hospital.
She did this for 6 days a week & attempt to run a house & 2 kids. As you can imagine you have a lot of time to get
philosophical about life when all you can do is stare at the ceiling, but I know
I love her more than life itself even if I don't show it.
The other unlucky thing for me on bed duty was I had a UTI (urinary tract
infection) which is quite normal but mine persisted for 7 weeks & trust me
you feel awful with the worst headaches. The old boy in the next bed (para) complained
about just about everything yet he only had one UTI lasting for a few days &
he could sit up and read/watch TV/use his phone etc. None of this I could do.
Just stare for 9 weeks at the ceiling or a set of mirrors above my eyes to look
around.
Eventually
the time came for removal of head traction, which wasn't as bad as I'd
preconceived but they bring along big old spanners, though they couldn't find
any and had to send down to the wheelchair workshop, and you can feel every
touch/noise/vibration as the pins are screwed into your head. But they just
quickly unscrew then mop up and it hurt like hell for a bit but over soon. Then
they came to remove the pins in my left toes which were dislocated. Thankfully I
couldn't feel anything but they just started pulling with a pair of pliers and
these pins came out but they were about 5 inches long (blimey) that would have
hurt.
The other thing of note that had slipped my mind is not having a shower for so
many weeks, especially one's hair. After the first week itches etc followed by
greasy texture & irritation for close on 7 weeks till the head traction came
off when they wheeled me on a prone trolley for a horizontal shower. There is a
theory of hair self cleaning after 10 weeks or so but I certainly never got
there and it was pretty horrible. And boy did I need a haircut, which I
eventually had in the on-site hairdresser who was really great with me. Such a
weird feeling actually moving and seeing the ward where I'd been for so long,
yet didn't recognize at all, with my upside down view of the world. Then the
shower itself, incredible feeling to have your hair washed after so long but the
feeling in my body below the neck was/is different or non existent so not
such a great 'body' experience as it would to a normal person who has a hot
shower after several weeks.
The big day
of me getting up drew nearer and part of the preparation is to raise the head of
the bed for a little more each day for periods of time. This is to get you used
to being upright as your brain & body has been horizontal for so long.
Indeed when they first get you up they give you drugs for your blood pressure
then stockings for your legs for blood pooling purposes then the dreaded hoist
(like a sack of potatoes) all for 20 minutes on the first day. As you feel sick
and in my case shoulder pain which has never gone and got worse. It was a big
anti climax though as after all that longing you suddenly realize how helpless
you are and in my case unable to do virtually anything.
As I migrated to being up more Heather used to take me off for a coffee in the
canteen. I vividly recall feeling like a rag doll being wheeled around &
then a coffee placed in front of me with a straw. I cried so much then &
have done an awful lot since, I remember clearly a moment outside the restaurant
in the sunshine sobbing on her
shoulder saying "I can't do this" So many basic things in life taken
away from me. Poor Hev had to be strong then as if I could I would have ended it
there.
Eventually
you're up and around all day every day and into the routine of physio/OT etc.
Unfortunately though I was a paying patient Stoke Mandeville is still just an
NHS hospital and don't really cater for private people etc so I was lucky if I'd get an
hour of physio a day etc and crappy equipment i.e. wheelchair, also a dirty room &
conditions. Again with the wisdom of hindsight I could have gone to the
Royal Bucks round the corner for my final 4 months of rehab and received
intensive rehab as well as a nice room etc and it wouldn't have cost any more.
Having said that it's the people/staff that count and barring a few that were
not nice or just cynical and nasty doing a job, most of the staff were just
great. When you're flat on your back & so dependent you notice who the nice
ones are and who are not.
An example of
this is when you're being fed often the food would be cold including the cup of
tea, but one or two caring nurses would get you another hot tea. They were not
allowed to microwave the food officially but on the odd occasion..
The food was so bad in Stoke (It was shipped in from North Wales & reheated)
that eventually my wife just brought in pre cooked food for me. Sometimes you
really are treated like an animal with no respect by people who are just not
caring & only doing it as a job. I'd like to meet some of these people one
day and explain what it's like to be so dependent & though I know
familiarity breeds contempt some of the nurses managed to still always show care
& be nice to you which if you're already low is so important. A couple of
vivid examples I can recall without naming names are one nurse had a terrible
chest problem but used to smoke but would always be coughing over you even
whilst feeding you and complaining about his lot. Another nurse I recall the
first time we met she gave me my evening medicine (4-6 tablets) and usually
whoever gave you these would put one or two in your mouth and give you a drink
(especially if it's paracetamols) as they are very big & dry. Not this nurse
though, she tipped the whole lot in and I choked. When I complained she said
'you never said'
Another time
the same nurse was just arriving for her shift & I'd just started walking
which is a real big deal & everyone congratulates you etc. I recall walking
very slowly with my wife behind me and this nurse wanted to get in her door
& bearing in mind she'd never seen me upright before just stood there with a
long face presumably because her long night was about to start. Even when my
wife said hello she didn't say anything just impatiently standing there till I
wobbled by. Absolutely no compassion or care for the people she's supposed to
look after. Words spring to mind that I can't publish. Some of the other nurses
or auxiliaries were great, really nice people.
We're all sad in hospital but many times during that period and since
I've wished just to be a 'para' as they can do most things eventually unlike if
you're a tetra albeit incomplete. Paraplegics can do all the basics see, whereas
I had to be washed,teeth cleaned,shaved,fed everything in fact. I know now
for instance I'd be independent and be able to drive etc. Don't get me wrong I'm
not bitching just wishing, and it could me much worse I know, but if I had no
pain & an upper body that was 'normal' there would be no holding me. I don't
want to sound like a winger though as they are just the thoughts that go through
your mind. We all wish for the next 'level' etc and I have admiration for the
people that really go for it and get the best out of the situation. I would too
if I could..
My secret
ambition was to walk out and perhaps wean myself off a catheter/leg bag. I
achieved this (just) by staggering the few yards to the lift & then out the
front entrance on December 15th 2000 and though my hand function is poor I
have learned many new tricks. My right side is my weak/poor side so I can't
really do much with that but can walk with hand sticks short distances. People
also have many misconceptions as they assume if you can walk (ish) that the rest
of it is a given. I'd trade as mentioned before my poor walking ability for
hands & arms that work properly. You can't pick & choose though and
lot's of people would love what I've got, and my hat goes off to those with
worse.
As mentioned
we haven't had the insurance stuff sorted so no adaptations, but I can get round
and with help with the personal stuff first thing can survive the day on my own.
One day I'd like to be independent with all the personal stuff and perhaps drive
etc. Unfortunately for me I get chronic pain all day & night in my
shoulders/neck/arms so I have to live with that. I could take pain killers but
experience has taught me they just leave you 'spaced' which I do not want as I'm
working full time, so I manage on Paracetamols etc until the evening. I'm open to anything though and have made enquiries into the
Cannabis project that is currently big news.
I recall
when I first came home for Xmas (Dec 15th escaped) the high & low of returning. Though I'd been
home for some weekends prior to acclimatize it's still a huge psychological
phase (one of three apparently) and though it's great to be home with your family it's also very hard to
come home to a smaller place not kitted out like hospital & a place where
you know & love but now cannot be the same or you can't do stuff. I remember
sitting at the breakfast table and having tears in my eyes because I couldn't
open the cereal box to pour it & having to ask my youngest son to do it.
Such a feeling of helplessness & dependency. You get used to all of it
though & learn new tricks all the time so I manage all day now on my own
with a panic button round my neck and cordless phones etc. Though between
Xmas & New Year I contracted DVT in my right leg (3 clots) so had to go back
to a local hospital and have injections and then remain on Wolferine (rat
poison) for 6 months to thin my blood as DVT can be very serious if it spreads
to the old heart/lungs. So that was depressing and another mountain to climb.
I've climbed
a few mountains & barring the pain I suffer life is getting better &
I'll climb more, with help from my wife. Next year I hope to drive for instance.
I wouldn't be able to do half of this if it were not for Hev who I've added some
hours to her day like a baby, but I don't wriggle but I guess it's better than being 6 ft under.
So where am I now....
Somewhat
candid overview I know but that's how I felt. I hope not to sound that negative,
merely truthful, and for others they would perhaps be different. Although not an
overly encouraging account I know, I hope to keep adding positives to the story
as I can do more than before
& I'm determined to do even more. I am more positive about the future &
haven't given up. You never
quite get used to the dignity thing, though I've got used to my routine of
needing help with the personal stuff. But people do not realize the most basic
task like feeding oneself if you can do that how much personal dignity can be
gained. I keep reading about people up to 2-3 yrs that make some improvement in
some areas so I'm hoping.
I get chronic pain
in shoulders/neck/arms (and resultant headaches) 24 hrs a day that has deteriorated
& I need painkillers every 4 hrs but I can walk round the house for short distances and get into the
garden etc. So it's not so crucial that we've not had the insurance payout to
adapt the house etc, otherwise I'd be in a home or something. My wife is my helper
(we haven't really any other choice) and she helps me with the
loo/dressing/showering but the rest of the day I'm independent if everything is
prepared just so. I'm
trying to do as much exercise as the pain/discomfort allows and have got
stronger with the knock on effect of learning new tricks. I've ordered an
expensive home gym (now installed & pretty cool) so will try even harder to get
fitter/stronger,though I can only do about 10 minutes twice a week, and a
private physio has just started coming for an hour a week. I can do so
much more when I look back to the days of being fed and drinking using a straw. I've
tried different drugs as well so will keep looking.
I have maybe
50% in my left arm/hand so I've learned to do quite a bit (drink alcohol no
problem). Maybe 10% on the right side. Improved feeling/sensitivity but
hypersensitive in various places. Below the waist is mostly burning pins &
needles. Also spasms after any period of relaxing or if I sleep. Also all the
usual wheelchair bound problems like excess weight cos I do no cardio vascular
exercise so I'm on a mouse like diet as I've gained nearly 3 stone (42 lbs) plus skin problems, blood
clots,arthritus,osteoporosis and who knows what in the future. As mentioned in
other memos it goes with the territory as a tetra/quad and I've even been told
to expect a reduced life expectancy of 5-10 years due to all the health
problems etc. Oh well..
My daily
routine is 8.15-8-30am log on to work etc & maybe 10-12 hrs later if there's
something on TV retire to lounge, but I can look after myself all day and I am learning web stuff as a
hobby which is going ok so I tend to be on one of the PC's 7 days a week as I can't do much else. Though I can
get next
door for a drink which 1 year ago you'd never have thought. And the latest trick
is
during the day I only use one stick to get around (will power) Oh I've kept my
cheeky humour as well.. who's
for a game of hopscotch? My standing & walking gait are a real problem as
because I can't feel much I'm in the wrong position so a lot of the muscles are
seizing as they compensate for an unnatural stance. Long term they just hurt
more & more, specifically the shoulders/arms/neck. It gets to the stage
where I can't relax them and the pain is unbearable. My physio said they were
very tense probably due to high tone. Even so I can survive on my own for the
day and work on the PC all day (though maybe one day I won't be able to) which are big mountains to have climbed. I'm
determined though to get more out of life than this pain permitting.
I'm worried
about becoming a recluse as due to all my pain/discomfort I don't go out much
and it's easier to stay in my 'comfort zone' and you see so many stories of
people who are really positive and go and do sports & activities and not let
their injuries hold them back. I'd like to be like that if only I didn't have
the pain. You see people worse than me driving for instance but I can't even
reach forward without pain. I know I've gotta keep my chin up though and hope it
eases & I'm more positive than I used to be. I'm inspired by other peoples
web sites and how well they have done. Being brutally honest I don't enjoy life
at the moment and it's more of an existence and survival but I can see a glimmer
of hope in other peoples experiences & for me. Some peoples sites I've
visited are very moving & compared to them my stuff is nothing.
From a
health point of view I still have a cyst at C3-4 which needs watching &
damaged knees, but not so damaged that they require surgery to correct as I'm so
limited with not much feeling it doesn't impede my normal life. On the positive
side I've avoided pressure sores and some of the other problems that
tetras/quads get so I'm thankful for that.
I've been to
many websites recently and realize how many people are so much worse off and yet
are positive and can do so much. This inspires me greatly as well as moves me
when you read their stories. It's typical that I was very fit & active
before. I used to play squash at a high level 4 to 8 times a week, soccer when
needed and included skiing/white water rafting and most sports as hobbies. As
well as all the DIY in the house, in general I was very active & always
busy. Bitter pill and very life changing. It often happens to people with active
lives I know as I guess you're more at risk. Life gets better for most people in
this situation so if anyone is out there that is 'new' then it will improve
(trust me) with help from friends/family etc.
Life is never going to be great as I knew it but a hell of a lot better now I'm
home, but barring the pain which I hope
will go or improve I will try & get the best out of it. Very clichéd I know
but you've got to really, either shrivel up
in the corner or go for it.. watch this space.
Of course since writing all of the above I've come on tremendously so check out
my diary for all my achievements since writing this. Never give up:-))

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